The Commonweal Cancer Help Program Resource Guide is a starting reference point to websites that have useful information on cancer research, treatment, diagnoses, and services. It is intended to assist individuals dealing with a cancer diagnosis and their families, friends and caregivers who want to support them. Michael Lerner’s Choices in Healing is another resource for information.
The guide is divided into three parts:
Resources for Specific Cancers
- Breast Cancer
- Brain Tumor
- Children and Young Adults
- Colon Cancer
- Head and Neck Cancer
- Leukemia
- Lung Cancer
- Lymphoma
- Melanoma
- Myeloma
- Ovarian Cancer
- Pancreatic Cancer
- Prostate Cancer
- Sarcoma
- Thyroid Cancer
- Testicular Cancer
Cancer Support Resources and Services
- Alternative, Complementary and Integrative Medicine
- Caregiving and Hospice
- Clinical Trial Information
- Coping
- Financial
- Foreign Language
- General Cancer Resources
- Residential Retreat Programs
- Survivorship
- Symptom Management
On Sitting with Uncertainty
Click here to read reflections from Cancer Help Program participants and alums.
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We welcome your content updates, comments, and suggestions for improving The Cancer Help Program Cancer Resources Guide. Please forward them to Arlene Allsman.
This list of resources is gathered from decades of research and work with the Cancer Help Program. We provide this information as a service for educational and informational purposes only. We do not sponsor or endorse any of the informational sites provided.
Also, the information does not provide medical advice or recommendation. You should not rely on this information as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. Any medical decisions should be made in consultation with your physician.
Resources for Specific Cancers
Breast Cancer
Advanced Breast Cancer Community
American Society of Breast Disease. Phone: 214-368-6836
Artemis Breast Cancer Research Newsletter
Breast Cancer Fund. Toll Free: 866-760-8223
HER2Support.org. Phone: 760-602-9178
IBC Support: Inflammatory Breast Cancer Help and Support
Inflammatory Breast Cancer Research Foundation. Toll Free: 877-786-7422
Living Beyond Breast Cancer. Toll Free: 888-753-LBBC (5222)
Men Against Breast Cancer. Toll Free: 866-547-MABC (6222)
Men for a Cause. Toll Free: 877-MEN4CURE (1-877-636-4287)
Metastatic Breast Cancer Network. Toll Free: 888-500-0370
National Breast Cancer Coalition. Toll Free: 800-622-2838
Nueva Vida, Inc. Toll Free: 866-986-8432
SHARE: Self-help for Women with Breast or Ovarian Cancer. Toll Free: 866-891-2392 Breast Cancer
Sisters Network, Inc. Toll Free: 866-781-1808
Susan G. Komen for the Cure. Toll Free: 877-GOKOMEN (877-465-6636)
Y-ME National Breast Cancer Organization. Toll Free: 800-221-2141 and 800-986-9505 (Spanish)
Brain Tumor
American Brain Tumor Association. Toll Free: 800-886-2282
Brain Tumor Foundation. Phone: 212-265-2401
Childhood Brain Tumor Foundation. Toll Free: 877-217-4166
Children’s Brain Tumor Foundation. Toll Free: 866-228-4673
National Brain Tumor Society. Toll Free: 800-934-CURE (2873). Toll Free: 800-770-8287
Pediatric Brain Tumor Foundation. Toll Free: 800-253-6530
Tug McGraw Foundation. Phone: 707-933-6445
Children and Young Adults
Alliance for Childhood Cancer. Phone: 571-483-1670
American Childhood Cancer Organization. Toll Free: 800-366-2223
Beyond the Cure: The National Children’s Cancer Society. Toll Free: 800-532-6459
Childhood Brain Tumor Foundation. Toll Free: 877-217-4166
Children’s Brain Tumor Foundation. Toll Free: 866-228-4673
Children’s Hospice International (CHI). Toll Free: 800-2-4-CHILD (800-242-4453)
Children’s Neuroblastoma Cancer Foundation. Toll Free: 866-671-2623
Children’s Tumor Foundation. Toll Free: 800-323-7938
Chordoma Foundation. Phone: 919-809-6779
CURE Childhood Cancer. Toll Free: 800-443-CURE (2873)
Group Loop (online support for teens with cancer). Toll Free: 888-793-9355
I’m too Young for This! . Toll Free: 877-735-4673
Kid Support. Phone: 847-869-1323
Kids Konnected. Toll Free: 800-899-2866
Make-A-Wish Foundation. Toll Free: 800-722-WISH (9474)
National Children’s Cancer Society. Toll Free: 800-532-6459
Neuroblastoma Children’s Cancer Society. Toll Free: 800-532-5162
Pediatric Brain Tumor Foundation. Toll Free: 800-253-6530
Starlight Children’s Foundation. Phone: 310-479-1212
SuperSibs. Toll Free: 888-417-4704. En Espanol.
Teens Living with Cancer. Phone: 585-563-6221
Colon Cancer
Colon Cancer Alliance. Toll Free: 877-422-2030
Colorectal Care Line. Toll Free: 866-657-8634
Head and Neck Cancer
Chordoma Foundation. Phone: 919-809-6779
Oral Cancer Foundation. Phone: 949-646-8000
Support for People with Oral, Head, and Neck Cancer (SPOHNC). Toll Free: 800-377-0928
Leukemia
BMT InfoNet. Toll Free: 888-597-7674
Leukemia and Lymphoma Society. Toll Free: 800-955-4572
Leukemia Research Foundation. Toll Free: 888-558-5385
National Marrow Donor Program. Toll Free: 800-MARROW2 (800-627-7692). Toll Free: 888-999-6743 Patient Advocacy
Lung Cancer
Lung Cancer Alliance. Toll Free: 800-298-2436
Lung Cancer Circle of Hope. Phone: 732-363-4426
Lung Cancer Foundation of America. Phone: 507-354-1361
LungCancer.org. Toll Free: 800-813- 4673
Lungevity Foundation. Phone: 312-464-0716
Uniting Against Lung Cancer. Phone: 212-627-5500
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Lymphoma
American Society for Blood and Marrow Transplantation. Phone: 847-427-0224
BMT InfoNet. Toll Free: 888-597-7674
International Waldenstrom’s Macroglobulinemia Foundation. Phone: 941-927-4963
Leukemia and Lymphoma Society. Toll Free: 800-955-4572
Lymphoma Information Network. Phone: 310-476-4924
Lymphoma Research Foundation. Toll Free: 800-500-9976
National Marrow Donor Program. Toll Free: 800-627-7692. Toll Free: 888-999-6743 (Patient Advocacy)
Patients Against Lymphoma. Phone: 610-346-8419
Melanoma
Aim at Melanoma. Toll Free: 1-877-AIM-2MEL (877-246-2635)
Melanoma International Foundation. Toll Free: 866-463-6663
Melanoma Research Foundation. Toll Free: 1-800-673-1290. Toll Free: 1-877-673-6460 (Patient Hotline)
The Skin Cancer Foundation. Phone: 212-725-5176
Myeloma
International Myeloma Foundation. Toll Free: 800-452-CURE (2873)
Multiple Myeloma Research Foundation (MMRF). Phone: 203-229-0464
Ovarian Cancer
Conversations: The International Ovarian Cancer Connection. Phone: 210-401-1604
Gilda Radner Familial Ovarian Cancer Registry. Toll Free: 800-OVARIAN (800-682-7426)
National Ovarian Cancer Coalition (NOCC). Toll Free: 888-682-7426
Ovarian Cancer National Alliance. Toll Free: 866-399-6262
Ovations for the Cure of Ovarian Cancer. Toll Free: 866-920-OFTC (6382)
SHARE: Self-help for Women with Breast or Ovarian Cancer. Toll Free: 866-537-4273
Pancreatic Cancer
Hirshberg Foundation for Pancreatic Cancer Research. Phone: 310-473-5121
Lustgarten Foundation. Toll Free: 866-789-1000
Michael Rolfe Pancreatic Cancer Foundation. Phone: 312-726-7766
Pancreatic Cancer Action Network (PanCAN). Toll Free: 877-2-PANCAN (877-272-6226)
The National Pancreas Foundation. Toll Free: 866-726-2737
Prostate Cancer
Men’s Health Network. Phone: 202-543-MHN-1 (6461)
Prostate Cancer Foundation. Toll Free: 800-757-CURE (2873)
The Prostate Net. Toll Free: 888-477-6763
Us TOO International, Inc. Toll Free: 800-80-USTOO (800-808-7866)
Zero- The Project to End Prostate Cancer. Phone: 202-463-9455
Sarcoma
Sarcoma Alliance. Phone: 415-381-7236
Sarcoma Alliance for Research through Collaboration. Phone: 734-930-7600
Sarcoma Foundation of America. Phone: 301-253-8687
The Life Raft Group. Phone: 973-837-9092
Thyroid Cancer
ThyCa: Thyroid Cancer Survivors’ Association, Inc. Toll Free: 877-588-7904
Testicular Cancer
Men’s Health Network. Phone: 202-543-MHN-1 (6461)
Testicular Cancer Resource Center
Cancer Support Resources and Services
Alternative, Complementary and Integrative Medicine
American Botanical Council (subscription). Toll Free: 800-373-7105
BC Cancer Agency. Toll Free: 800-663-333
Block Center – Integrative Cancer Treatment. Toll Free: 877-41Block (412-5625)
MD Anderson Complementary/Integrative Medicine. Toll Free: 877-MDA-6789
Cancer Guide – Alternative Therapies
Consumerlab.com (subscription). Toll Free: 888-502-5100
MedWatch. Toll Free: 888-INFO-FDA (463-6332)
The Moss Reports. Toll Free: 800-980-1234
National Center for Complementary and Alternative Medicine. Toll Free: 888-644-6226 TTY: 866-464-3615
NIH Office of Dietary Supplements. Phone: 301-435-2920
Natural Medicines Comprehensive Database. Phone: 209-472-2244
Office of Cancer Complementary and Alternative Medicine. Phone: 301-435-7980
The Healing Mind – Dr. Martin Rossman. Phone: 415-925-8600
U.S. Pharmacopeia. Toll Free: 800-227-8772
Caregiving and Hospice
American Hospice Foundation. Toll Free: 800-347-1413
Family Caregiver Alliance. Toll Free: 800-445-8106
Hospice Education Institute. Toll Free: 800-331-1620
Hospice Foundation of America. Toll Free: 800-854-3402
International Association for Hospice and Palliative Care (IAHPC). Toll Free: 866-374-2472
Jack and Jill Late Stage Cancer Foundation. Phone: 404-537-5253
National Family Caregivers Association. Toll Free: 800-896-3650
National Hospice and Palliative Care Organization. Multilingual: 877-658-8896
Toll Free: 877-658-8898
Clinical Trial Information
Cancer.gov-Clinical Trials. Toll Free: 800-4-CANCER (422-6237)
CenterWatch Clinical Trials Listing Service. Toll Free: 866-219-3440
ClinicalTrials.gov (NIH)
Coalition of National Cancer Cooperative Groups, Inc. Toll Free: 877-227-8451
EmergingMed. Toll Free: 877-601-8601
Mayo Clinic-Clinical Trials. Toll Free: 800-664-4542
Coping
ACS: I Can Cope Online Classes. Toll Free: 800-227-2345
CancerCare. Toll Free: 800-813-HOPE (4673)
Cancer Hope Network. Toll Free: 800-552-4366
Cancer Support Community. Toll Free: 888-793-9355
LiveStrong. Toll Free: 866-236-8820. Toll Free: 866-673-7205 (cancer support)
Financial
AirCare Alliance. Toll Free: 888-260-9707
Air Charity Network. Toll Free: 877-621-7177
Anderson Network, A Program of Volunteer Services. Toll Free: 800-345-6324
Angel Foundation. Phone: 612-627-9000
Cancer Financial Assistance Association
Cancer Legal Resource Center. Toll Free: 866-THE-CLRC (843-2572)
Corporate Angel Network. Toll Free: 866-328-1313
Directory of Health Organizations (NIH). Toll Free: 301-496-1131
Foundation for Health Coverage Education. Toll Free: 800-234-1317
The Max Foundation. Toll Free: 888-462-9368
National Association of Hospital Hospitality Houses. Toll Free: 800-542-9730
National Patient Travel Center. Toll Free: 800-296-1217
National Transplant Assistance Fund. Toll Free: 800-642-8399
Oley Foundation. Toll Free: 800-776-OLEY (6539)
Partnership for Prescription Assistance. Toll Free: 888-4PPA- NOW (477-2669)
Patient Access Network Foundation. Toll Free: 866-316-PANF (7263)
Patient Advocate Foundation. Toll Free: 800-532-5274
Spare Key Foundation. Phone: 952-406-8872
Sam Fund. Toll Free: 866-439-9365
Ulman Cancer Fund for Young Adults. Toll Free: 888-393-FUND (3863)
V Foundation for Cancer Research. Toll Free: 1-800-4JIMMYV (454-6698)
Foreign Language
ACS: Asian Pacific Islander Cancer Education Materials Tool
Cancer.gov – Algunos documentos especificos estan en espanol. Toll Free: 800-422-6237
CancerCare – Espanol. Toll Free: 800-813-4673
Dia de La Mujer Latina. Phone: 281-489-1111
Health Information Translations
Informacion de Salud para Usted
Latinas Contra Cancer. Toll Free: 888-LCC-8110 (888-522-8110)
Nueva Vida, Inc. Toll Free: 866-986-8432
General Cancer Resources
American Society of Clinical Oncology. Phone: 571-483-1300
Association of Cancer Online Resources
CancerQuest. Phone: 404-727-0308
CaringBridge. Phone: 651-789-2300
Center for Mind-Body Medicine. Phone: 202-966-7338
Centers for Disease Control and Prevention (CDC). Toll Free: 800-323-4636
Ceres Community Project. Phone: 707-829-5833
Children’s Cause for Cancer Advocacy. Phone: 202-336-8374. Phone: 202-336-8375
Cook for Your Life. Phone: 212 799 3894
Foundation for Women’s Cancer. Toll Free: 800-444-4441
Healing Journeys. Toll Free: 800-423-9882
Lesbian Community Cancer Project. Phone: 773-388-1600
Mautner Project. Toll Free: 866-MAUTNER (866-628-8637)
MyOncofertility.org. Toll Free: 866-708-FERT (3378)
National Asian Women’s Health Organization
National Cancer Institute (NCI). Toll Free: 800-4-CANCER (800-422-6237)
National LGBT Cancer Network. Phone: 212-675-2633
National Comprehensive Cancer Network
National Organization for Rare Disorders. Toll Free: 800-999-6673
Native American Cancer Research. Toll Free: 800-537-8295
Patient Advocate Foundation. Toll Free: 800-532-5274
Prevent Cancer Foundation. Toll Free: 800-227-2732
Research Advocacy Network. Toll Free: 877-276-2187
Residential Retreat Programs
Commonweal Cancer Help Program. Phone: 415-868-0970
Harmony Hill Retreat Center – Cancer Program. Phone: 360-898-2363
Smith Center for Healing and the Arts. Phone: 202-483-8600
Callanish Healing Retreats. Phone: 604-732-0633
Tapestry Retreat. Phone: 403-670-1767
Survivorship
Beyond the Cure: The National Children’s Cancer Society. Toll Free: 800-532-6459
Cancervive – Dedicated to the Challenge of Life After Cancer
Journey Forward. Phone: 707-636-5900
National Coalition for Cancer Survivorship. Toll Free: 888-650-9127. Toll Free: 877-NCSS-YES (622-7937) cancer survivor tool box
NCI Office of Cancer Survivorship. Phone: 301-402-2964
Symptom Management
American Pain Foundation. Toll Free: 888-615-PAIN (7246)
Cancer Pain Management in Children. Phone: 212-201-2670
Center to Advance PalliativeCare (CAPC). Phone: 212-201-2670
Food and Nutrition Information Center. Phone: 301-504-5414
National Institute of Dental and Craniofacial Research. Phone: 414-918-9180
National Lymphedema Network. Toll Free: 800-541-3259