The Commonweal Cancer Help Program Resource Guide is a starting reference point to websites that have useful information on cancer research, treatment, diagnoses, and services. It is intended to assist individuals dealing with a cancer diagnosis and their families, friends and caregivers who want to support them.

The guide is divided into three parts:

Resources for Specific Cancers

Cancer Support Resources and Services

On Sitting with Uncertainty

Click here to read reflections from Cancer Help Program participants and alums.

***

You can also download a printable version of the Cancer Resource Guide (PDF document).

We welcome your content updates, comments, and suggestions for improving The Cancer Help Program Cancer Resources Guide. Please forward them to Arlene Allsman.

This list of resources is gathered from decades of research and work with the Cancer Help Program. We provide this information as a service for educational and informational purposes only. We do not sponsor or endorse any of the informational sites provided.

Also, the information does not provide medical advice or recommendation. You should not rely on this information as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. Any medical decisions should be made in consultation with your physician.

Resources for Specific Cancers

Breast Cancer

Advanced Breast Cancer Community

American Society of Breast Disease. Phone: 214-368-6836

Artemis Breast Cancer Research Newsletter

Breast Cancer Fund. Toll Free: 866-760-8223

Bright Pink

Driving Miss Darby

HER2Support.org. Phone: 760-602-9178

IBC Support: Inflammatory Breast Cancer Help and Support

Inflammatory Breast Cancer Research Foundation. Toll Free: 877-786-7422

Living Beyond Breast Cancer. Toll Free: 888-753-LBBC (5222)

Men Against Breast Cancer. Toll Free: 866-547-MABC (6222)

Men for a Cause. Toll Free: 877-MEN4CURE (1-877-636-4287)

Metastatic Breast Cancer Network. Toll Free: 888-500-0370

National Breast Cancer Coalition. Toll Free: 800-622-2838

Nueva Vida, Inc. Toll Free: 866-986-8432

SHARE: Self-help for Women with Breast or Ovarian Cancer. Toll Free: 866-891-2392 Breast Cancer

Sisters Network, Inc. Toll Free: 866-781-1808

Susan G. Komen for the Cure. Toll Free: 877-GOKOMEN (877-465-6636)

Y-ME National Breast Cancer Organization. Toll Free: 800-221-2141 and 800-986-9505 (Spanish)

Young Survival Coalition

Brain Tumor

American Brain Tumor Association. Toll Free: 800-886-2282

Brain Tumor Foundation. Phone: 212-265-2401

Childhood Brain Tumor Foundation. Toll Free: 877-217-4166

Children’s Brain Tumor Foundation. Toll Free: 866-228-4673

National Brain Tumor Society. Toll Free: 800-934-CURE (2873). Toll Free: 800-770-8287

Pediatric Brain Tumor Foundation. Toll Free: 800-253-6530

Tug McGraw Foundation. Phone: 707-933-6445

Children and Young Adults

2bMe

Alliance for Childhood Cancer. Phone: 571-483-1670

American Childhood Cancer Organization. Toll Free: 800-366-2223

Beyond the Cure: The National Children’s Cancer Society. Toll Free: 800-532-6459

Childhood Brain Tumor Foundation. Toll Free: 877-217-4166

Children’s Oncology Group

Childhood Leukemia Center

Children’s Brain Tumor Foundation. Toll Free: 866-228-4673

Children’s Hospice International (CHI). Toll Free: 800-2-4-CHILD (800-242-4453)

Children’s Neuroblastoma Cancer Foundation. Toll Free: 866-671-2623

Children’s Tumor Foundation. Toll Free: 800-323-7938

Chordoma Foundation. Phone: 919-809-6779

CURE Childhood Cancer. Toll Free: 800-443-CURE (2873)

Group Loop (online support for teens with cancer). Toll Free: 888-793-9355

I’m too Young for This! [i(2)y]. Toll Free: 877-735-4673

Kid Support. Phone: 847-869-1323

Kids Konnected. Toll Free: 800-899-2866

Make-A-Wish Foundation. Toll Free: 800-722-WISH (9474)

National Children’s Cancer Society. Toll Free: 800-532-6459

Neuroblastoma Children’s Cancer Society. Toll Free: 800-532-5162

Pediatric Brain Tumor Foundation. Toll Free: 800-253-6530

Planet Cancer

Starlight Children’s Foundation. Phone: 310-479-1212

SuperSibs. Toll Free: 888-417-4704. En Espanol.

Teens Living with Cancer. Phone: 585-563-6221

Colon Cancer

Colon Cancer Alliance. Toll Free: 877-422-2030

Colorectal Care Line. Toll Free: 866-657-8634

Head and Neck Cancer

Chordoma Foundation. Phone: 919-809-6779

Oral Cancer Foundation. Phone: 949-646-8000

Support for People with Oral, Head, and Neck Cancer (SPOHNC). Toll Free: 800-377-0928

Leukemia

BMT InfoNet. Toll Free: 888-597-7674

Childhood Leukemia Center

Leukemia and Lymphoma Society. Toll Free: 800-955-4572

Leukemia Research Foundation. Toll Free: 888-558-5385

National Marrow Donor Program. Toll Free: 800-MARROW2 (800-627-7692). Toll Free: 888-999-6743 Patient Advocacy

Lung Cancer

Lung Cancer Alliance. Toll Free: 800-298-2436

Lung Cancer Circle of Hope. Phone: 732-363-4426

Lung Cancer Foundation of America. Phone: 507-354-1361

Lung Cancer Online

LungCancer.org. Toll Free: 800-813- 4673

Lungevity Foundation. Phone: 312-464-0716

Uniting Against Lung Cancer. Phone: 212-627-5500

<br<

Lymphoma

American Society for Blood and Marrow Transplantation. Phone: 847-427-0224

BMT InfoNet. Toll Free: 888-597-7674

International Waldenstrom’s Macroglobulinemia Foundation. Phone: 941-927-4963

Leukemia and Lymphoma Society. Toll Free: 800-955-4572

Lymphoma Information Network. Phone: 310-476-4924

Lymphoma Research Foundation. Toll Free: 800-500-9976

National Marrow Donor Program. Toll Free: 800-627-7692. Toll Free: 888-999-6743 (Patient Advocacy)

Patients Against Lymphoma. Phone: 610-346-8419

Melanoma

Aim at Melanoma. Toll Free: 1-877-AIM-2MEL (877-246-2635)

Melanoma International Foundation. Toll Free: 866-463-6663

Melanoma Research Foundation. Toll Free: 1-800-673-1290. Toll Free: 1-877-673-6460 (Patient Hotline)

The Skin Cancer Foundation. Phone: 212-725-5176

Myeloma

International Myeloma Foundation. Toll Free: 800-452-CURE (2873)

Multiple Myeloma Research Foundation (MMRF). Phone: 203-229-0464

Ovarian Cancer

Bright Pink

Conversations: The International Ovarian Cancer Connection. Phone: 210-401-1604

Gilda Radner Familial Ovarian Cancer Registry. Toll Free: 800-OVARIAN (800-682-7426)

National Ovarian Cancer Coalition (NOCC). Toll Free: 888-682-7426

Ovarian Cancer National Alliance. Toll Free: 866-399-6262

Ovations for the Cure of Ovarian Cancer. Toll Free: 866-920-OFTC (6382)

SHARE: Self-help for Women with Breast or Ovarian Cancer. Toll Free: 866-537-4273

Pancreatic Cancer

Hirshberg Foundation for Pancreatic Cancer Research. Phone: 310-473-5121

Lustgarten Foundation. Toll Free: 866-789-1000

Michael Rolfe Pancreatic Cancer Foundation. Phone: 312-726-7766

Pancreatic Cancer Action Network (PanCAN). Toll Free: 877-2-PANCAN (877-272-6226)

The National Pancreas Foundation. Toll Free: 866-726-2737

Prostate Cancer

Men’s Health Network. Phone: 202-543-MHN-1 (6461)

Prostate Cancer Foundation. Toll Free: 800-757-CURE (2873)

The Prostate Net. Toll Free: 888-477-6763

Us TOO International, Inc. Toll Free: 800-80-USTOO (800-808-7866)

Zero- The Project to End Prostate Cancer. Phone: 202-463-9455

Sarcoma

Sarcoma Alliance. Phone: 415-381-7236

Sarcoma Alliance for Research through Collaboration. Phone: 734-930-7600

Sarcoma Foundation of America. Phone: 301-253-8687

The Life Raft Group. Phone: 973-837-9092

Thyroid Cancer

ThyCa: Thyroid Cancer Survivors’ Association, Inc. Toll Free: 877-588-7904

Testicular Cancer

Men’s Health Network. Phone: 202-543-MHN-1 (6461)

Testicular Cancer Resource Center

Cancer Support Resources and Services

Alternative, Complementary and Integrative Medicine

American Botanical Council (subscription). Toll Free: 800-373-7105

Annie Appleseed Project

BC Cancer Agency. Toll Free: 800-663-333

Block Center – Integrative Cancer Treatment. Toll Free: 877-41Block (412-5625)

MD Anderson Complementary/Integrative Medicine. Toll Free: 877-MDA-6789

Cancer Guide – Alternative Therapies

Consumerlab.com (subscription). Toll Free: 888-502-5100

HerbMed

MedWatch. Toll Free: 888-INFO-FDA (463-6332)

The Moss Reports. Toll Free: 800-980-1234

National Center for Complementary and Alternative Medicine. Toll Free: 888-644-6226 TTY: 866-464-3615

NIH Office of Dietary Supplements. Phone: 301-435-2920

Natural Medicines Comprehensive Database. Phone: 209-472-2244

Office of Cancer Complementary and Alternative Medicine. Phone: 301-435-7980

The Healing Mind – Dr. Martin Rossman. Phone: 415-925-8600

U.S. Pharmacopeia. Toll Free: 800-227-8772

Caregiving and Hospice

American Hospice Foundation. Toll Free: 800-347-1413

Family Caregiver Alliance. Toll Free: 800-445-8106

Hospice Education Institute. Toll Free: 800-331-1620

Hospice Foundation of America. Toll Free: 800-854-3402

Hospice.Net

International Association for Hospice and Palliative Care (IAHPC). Toll Free: 866-374-2472

Jack and Jill Late Stage Cancer Foundation. Phone: 404-537-5253

National Family Caregivers Association. Toll Free: 800-896-3650

National Hospice and Palliative Care Organization. Multilingual: 877-658-8896
Toll Free: 877-658-8898

Clinical Trial Information

Cancer.gov-Clinical Trials. Toll Free: 800-4-CANCER (422-6237)

CenterWatch Clinical Trials Listing Service. Toll Free: 866-219-3440

ClinicalTrials.gov (NIH)

Coalition of National Cancer Cooperative Groups, Inc. Toll Free: 877-227-8451

EmergingMed. Toll Free: 877-601-8601

Mayo Clinic-Clinical Trials. Toll Free: 800-664-4542

ResearchMatch

Coping

ACS: I Can Cope Online Classes. Toll Free: 800-227-2345

CancerCare. Toll Free: 800-813-HOPE (4673)

Cancer Hope Network. Toll Free: 800-552-4366

Cancer Support Community. Toll Free: 888-793-9355

LiveStrong. Toll Free: 866-236-8820. Toll Free: 866-673-7205 (cancer support)

Young Cancer Spouses

Financial

AirCare Alliance. Toll Free: 888-260-9707

Air Charity Network. Toll Free: 877-621-7177

Anderson Network, A Program of Volunteer Services. Toll Free: 800-345-6324

Angel Foundation. Phone: 612-627-9000

Cancer Financial Assistance Association

Cancer Legal Line

Cancer Legal Resource Center. Toll Free: 866-THE-CLRC (843-2572)

Cancer.Net

Corporate Angel Network. Toll Free: 866-328-1313

Directory of Health Organizations (NIH). Toll Free: 301-496-1131

Foundation for Health Coverage Education. Toll Free: 800-234-1317

The Max Foundation. Toll Free: 888-462-9368

National Association of Hospital Hospitality Houses. Toll Free: 800-542-9730

National Patient Travel Center. Toll Free: 800-296-1217

National Transplant Assistance Fund. Toll Free: 800-642-8399

NeedyMeds

Oley Foundation. Toll Free: 800-776-OLEY (6539)

Partnership for Prescription Assistance. Toll Free: 888-4PPA- NOW (477-2669)

Patient Access Network Foundation. Toll Free: 866-316-PANF (7263)

Patient Advocate Foundation. Toll Free: 800-532-5274

Spare Key Foundation. Phone: 952-406-8872

Sam Fund. Toll Free: 866-439-9365

Ulman Cancer Fund for Young Adults. Toll Free: 888-393-FUND (3863)

V Foundation for Cancer Research. Toll Free: 1-800-4JIMMYV (454-6698)

Foreign Language

ACS: Asian Pacific Islander Cancer Education Materials Tool

Cancer.gov – Algunos documentos especificos estan en espanol. Toll Free: 800-422-6237

CancerCare – Espanol. Toll Free: 800-813-4673

Dia de La Mujer Latina. Phone: 281-489-1111

Espanol – Healthfinder

Health Information Translations

Informacion de Salud para Usted

Latinas Contra Cancer. Toll Free: 888-LCC-8110 (888-522-8110)

Nueva Vida, Inc. Toll Free: 866-986-8432

General Cancer Resources

American Society of Clinical Oncology. Phone: 571-483-1300

Association of Cancer Online Resources

CancerGuide

CancerQuest. Phone: 404-727-0308

CancerIndex

CaringBridge. Phone: 651-789-2300

Center for Mind-Body Medicine. Phone: 202-966-7338

Centers for Disease Control and Prevention (CDC). Toll Free: 800-323-4636

Ceres Community Project. Phone: 707-829-5833

Children’s Cause for Cancer Advocacy. Phone: 202-336-8374. Phone: 202-336-8375

Cook for Your Life. Phone: 212 799 3894

Foundation for Women’s Cancer. Toll Free: 800-444-4441

Healing Journeys. Toll Free: 800-423-9882

Lesbian Community Cancer Project. Phone: 773-388-1600

Lotsa Helping Hands

Mautner Project. Toll Free: 866-MAUTNER (866-628-8637)

MyOncofertility.org. Toll Free: 866-708-FERT (3378)

National Asian Women’s Health Organization

National Cancer Institute (NCI). Toll Free: 800-4-CANCER (800-422-6237)

National LGBT Cancer Network. Phone: 212-675-2633

National Comprehensive Cancer Network

National Organization for Rare Disorders. Toll Free: 800-999-6673

Native American Cancer Research. Toll Free: 800-537-8295

OncoLink

Patient Advocate Foundation. Toll Free: 800-532-5274

Prevent Cancer Foundation. Toll Free: 800-227-2732

Research Advocacy Network. Toll Free: 877-276-2187

Residential Retreat Programs

Commonweal Cancer Help Program. Phone: 415-868-0970

Harmony Hill Retreat Center – Cancer Program. Phone: 360-898-2363

Smith Center for Healing and the Arts. Phone: 202-483-8600

Callanish Healing Retreats. Phone: 604-732-0633

Tapestry Retreat. Phone: 403-670-1767

Survivorship

Beyond the Cure: The National Children’s Cancer Society. Toll Free: 800-532-6459

Cancervive – Dedicated to the Challenge of Life After Cancer

Journey Forward. Phone: 707-636-5900

National Coalition for Cancer Survivorship. Toll Free: 888-650-9127. Toll Free: 877-NCSS-YES (622-7937) cancer survivor tool box

NCI Office of Cancer Survivorship. Phone: 301-402-2964

Symptom Management

American Pain Foundation. Toll Free: 888-615-PAIN (7246)

Cancer Pain Management in Children. Phone: 212-201-2670

Center to Advance PalliativeCare (CAPC). Phone: 212-201-2670

Food and Nutrition Information Center. Phone: 301-504-5414

Lymphedema Treatments

National Institute of Dental and Craniofacial Research. Phone: 414-918-9180

National Lymphedema Network. Toll Free: 800-541-3259

Oncology Nutrition Dietetic Practice Group